Pneuma-NO-sis

During rounds today one of the doctors said that there was a possibility of pneumatosis. I asked our nurse after the docs left what that meant and she said that it is basically an infection. So they are doing an x-ray at noon today so we should have a better answer then. So I am praying for NO pneumatosis or pneuma-NO-sis. :)

Urine output is still a concern. Her swelling keeps going up; I feel so awful for her. And to think 2 days ago she had double digit cc diapers! But she has had some major changes in the past couple of days: she's off her blood pressure medicines; she's off the ventilator and having to breathe more on her own; she's not getting platelets or blood transfusions as often. So maybe she just needs a couple days of rest and for her body to adjust to all the changes. She is moving around more than she was yesterday but I can tell that she just needs to rest. So when we visit her we just sit there looking at her, hoping and praying that she will feel better. I know we aren't the only ones praying and that comforts me to know so many people worldwide are praying for her. Throughout this whole experience (from finding out she has down syndrome to being in the NICU) I've learned so much more how God is faithful and just plain awesome. I'll post an update later on the pneumatosis.