Wednesday, September 2, 2009

Chasing Our Tails

A level goes up; a level goes down. Every time we go to see her it's always the same. They had to increase this but they were able to decrease that. The NICU nurse with her last night said that it's very much like chasing our tails. It will continue to be this way for awhile, but every day I feel like God is strengthening me more each day. I can't explain the peace and joy I've been feeling so much of lately. I just feel so comforted knowing that so many people are praying for her and that she is in such good hands. I often imagine as I'm looking at her just laying there and I want to hold her and touch her so badly that Jesus has her in His arms. It gets me quite emotional but it just makes me feel so much at peace.

I think the hardest thing for me and for a lot of my friends and family is that there isn't much we can do physically for her. We're on the sidelines cheering for each small victory and coming together for the bad times. It still amazes me to see and hear about the number of people who have joined my little girl's team. If you are on Facebook, check out the group Prayers for Alyssa Marie. My friend started it and the growth of this group just amazes and humbles me. I thank God so much for every person who has reached out to us.

Here is a picture of our little angel.


  1. Isn't it wonderful to know that Alyssa is in Jesus' constant care and, yes, in His arms. Right before Lily's heart surgery I whispered to her that even though mommy couldn't be there in the O.R., Jesus was holding her hand. Praise Him that He was also holding my hand during that difficult time...just as He's holding yours now. I thank God for your faith in Him.

    I'm off to join the Facebook group. God bless!!

  2. I heard about baby Alyssa through a friend of mine who was asking for prayers for her on FB (Nikki McAnally)... I have been praying for her ever since!... Seeing pictures of Alyssa brings back memories of when my niece was born. She was very premature and stayed in NICU for months... She is now a vibrant 13 year old cheerleader! Baby Alyssa has proven that she is a fighter! I will continue to pray for your family, the doctors, the nurses, and especially your little angel! God bless!