A level goes up; a level goes down. Every time we go to see her it's always the same. They had to increase this but they were able to decrease that. The NICU nurse with her last night said that it's very much like chasing our tails. It will continue to be this way for awhile, but every day I feel like God is strengthening me more each day. I can't explain the peace and joy I've been feeling so much of lately. I just feel so comforted knowing that so many people are praying for her and that she is in such good hands. I often imagine as I'm looking at her just laying there and I want to hold her and touch her so badly that Jesus has her in His arms. It gets me quite emotional but it just makes me feel so much at peace.
I think the hardest thing for me and for a lot of my friends and family is that there isn't much we can do physically for her. We're on the sidelines cheering for each small victory and coming together for the bad times. It still amazes me to see and hear about the number of people who have joined my little girl's team. If you are on Facebook, check out the group Prayers for Alyssa Marie. My friend started it and the growth of this group just amazes and humbles me. I thank God so much for every person who has reached out to us.
Here is a picture of our little angel.